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Next Steps

Well, I guess thats it for now. I finished my radiation therapy last week. Now comes what could be the hardest part... waiting.

I have some follow-up appointments this month, but I won’t be having another PET scan until June or July. This PET scan will determine if there is any residual cancer left inside me. If there is, I have no idea what will happen... probably go back to chemotherapy or something. I’ve been reading a lot of the message boards for people living with cancer, and it seems like every post I read is about someone who has gone through treatment for non-Hodgkin’s lymphoma, and now it has come back... I probably shouldn’t be reading this stuff.

I still don’t feel close to normal yet. I imagine it will be a long time until I feel strong and able again. I’ve spent so much time nursing my health at home and at the hospital. Its very weird not going into the hospital for either chemotherapy or radiation... feels kind of lonely, believe it or not. Its a strange thing when you’ve been living for so many months consumed by a fight against cancer, and then it just stops... and you’re left alone with your thoughts.

I can’t help but feel a bit worried. I’ve put so many aspects of my life on hold to fight cancer, and the pressure of waiting for this scan can sometimes wake me up at night.

But I have to pat myself on the back a bit. I made it through a tough cancer treatment. Not everybody can say that they made it through... and there were times when people thought that I wouldn’t! Now, its wait and see. I’m trying not to focus on it, but thats easier said than done.

Comments

Hi I came across your story on the Lance Armstrong website. Just want to tell you you'll get through it and be in one piece again. I was diagnosed at 23 (after being misdiagnosed really badly!!) with Primary Mediastinal large b cell lymphoma, my tumor was 22cm *?, see really badly misdiagnosed!!) I needed a transplant using my own cells plus all that regular chemo(CHOP+R), rads, and ICE. I'm 2 and 1/2 years in Remission!! Your site caught my eye because I'm also from Chelmsford Ma, lived there since I was 11 and recently moved into my own place. I wish you much luck; if you haven't checked out the webmagic lymphoma forums (do a google search for it) you should it's an active board and very good info and have made very good friendships although I do understand your worry of reoccurance and being overwhelmed by people reoccuring who have your disease. Your cancer was actually on the smaller side (under 10cm, so that is alot of postiveness on your side!!)
Hugs Laura

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